Leukemia?
Brain Tumor? Drug Overdose? Autism? Kidney Failure?
Never,
Ever, Did God
Choose
You or Your Child
My
God! God Is Not That Mean
Some of the most
evil, misguided words about parenting are making the rounds again. When I recently
saw them on Facebook, I had to stuff my hands in my pockets to quell the urge
to pound the keys and type my anger and dismay. Why did I stifle that urge? I
am and continue to be stunned and angry, but I saw that people get some sort of
perverse comfort from this garbage. Last week, the noxious thing had 125 Likes
and 31 people had shared it.
What is this vile
prose making its rounds of the Web? It’s a pseudo-inspirational poem that tells
parents of chronically or terminally ill, disabled, and challenged children how
special they are and that God chose them.
The first time I saw
a version of this God-chose-you nonsense was in 1985 on the living room wall at
the Ronald McDonald House in Gainesville, Florida. Titled “Heaven’s Very
Special Child,” it advises parents of disabled children that God chose them. It
adds that He put quite a lot of effort into doing so because of the profound privilege
to receive such a gift. I shook my head in disbelief that anyone could write
such drivel and also that anyone was cruel enough to put it in plain view of
the parents it was supposed to—but certainly does not—celebrate.
Parents and family
members stay at the Ronald McDonald House because a child has a major
illness—heart abnormalities, major organ failures, cancer, diseases that defy
diagnosis, severe birth defects. Their child may have been in an accident so
serious that life-saving techniques available only in a university hospital
setting are necessary to keep that child alive. We stayed at the Ronald
McDonald House because my child, Alexa, had brain cancer.
Most of the time we
stayed at RM House, I was exhausted, filled with dread, fearful, unable to eat
or sleep, and emotionally, physically, and psychologically overwrought. I did
not feel “special.” Reading that plaque and its message that God “chose” me only
increased my anguish. I wanted to scream out loud, climb on a chair, remove the
plaque from the wall, and throw it in the trash, where I thought it belonged. I
still believe such drivel belongs in the trash. I’m shocked that it is doled
out to heartbroken parents like it’s some sort of balm for their wounds.
Another negative
aspect of such dreck is that it purports that mothers/parents of children who
have life-threatening illnesses or physical/mental/developmental challenges are
chosen for certain reasons. Flowery phrases extol their special strength and
wisdom, and that they’re unselfish (or just selfish enough as one of them
states), or that they are among the few capable of great faith, and worse,
great love, the greatest love, because it’s “supposed” to be more difficult to
love a child that’s sick or is challenged.
Let’s be clear about
love: Mothers, fathers, and other guardians and caregivers do not need to be faced with the death of
their child, or their child’s suffering and great need of hands-on care—whether
it be for days, months, years, or a lifetime—to have the greatest, most supreme
love for their child. I did not, do not love Alexa more than I love my other
children. No special strength, challenge, or blessing from God was or is necessary
to love all my children. That is what parents do: They love their children.
It’s that love that moves us, unawares, to do all that we can for our children,
from birth, because special needs, illness, or challenges aside, the human
infant must have such intense care to survive. We provide that care and that
love because it springs forth from our basic human instincts to care for, love,
and nurture our children. It is one of the greatest human callings.
It mocks and
disparages all parental love to say that calling to love our children morphs
somehow into a different, higher love when faced with adversity.
I don’t say or even
hint that it’s easy to care for a child who has a serious illness (or any other
of the conditions I’ve mentioned). It isn’t. But just like when your baby is a
newborn and it cries during the night, you get up and feed the baby. When your
child requires that you sit beside them for hours and mop up vomit while chemo
drips through their veins in an effort to save their life, you mop up the
vomit—that is, “you get up and feed the baby.” When your child needs to go to
the doctor for a checkup, you take your child to the doctor. When your child
needs to go to a teaching hospital for brain surgery, you take your child to
that hospital.
Would I and the
thousands of other parents who have shared experiences similar to mine prefer
to simply go to the doctor? Absolutely. But in certain situations, you have no
choice. It’s part of the love, it’s part of being a parent. You don’t rise to
the challenge because God has gifted you with a special child. You rise to the
challenge because you love your child.
And anyway, what
kind of a God sits up on a throne in the clouds and decides which child will be
“special,” as noted in this disjointed prose? It’s abhorrent to describe, much
less believe, that God scans the Earth and then decides which parent will
conceive a child that has a disability or illness or accident. God would decide
a child will have cancer? God would decide a child will have heart defects? God
would decide a child will be maimed in an accident? God would decide a child will
have autism? God would decide a child will become drug addicted? The idea that
a supreme being and creator, one who loves us, would do such things is despicable.
If God chose me to be the parent of a child who would have brain cancer and die
of that disease, then I don’t choose that particular God.
My God! My God
doesn’t operate like that. My God doesn’t micromanage the lives of people on
Earth. My God doesn’t micromanage DNA. My God doesn’t manipulate a toddler’s
blood cells and tweak them so that child gets leukemia. My God doesn’t micromanage
the chambers in a teenager’s heart so that one is faulty and that child either
gets a transplant or dies.
My God! Where do
people come up with such garbage?
Of course, we ask
why: Why my child? Why me? I have asked why a thousand times and counting. Why?
And you know what? I don’t get many satisfying answers. Life has too many
mysteries for me to fathom. I can’t figure out why a cell goes haywire and
starts reproducing because some awful switch in a child’s body chemistry has
jumped to on, producing rogue cells. I can surmise that the environment and
what we’ve done to it are part of those answers. I also know that some things
are just random. No answers are available. I know that I just have to live with
that.
What I do know is
that God doesn’t have much to do with child illness, disabilities, challenges.
What I do know is that God did not
choose me or any other parent to be the parent of a “special child.”
So where is God in
this? Sometimes, I admit, that it’s hard to find God. Anne Lamott, one of my
favorite writers, often says a variation of, “God, would it be so much skin off
your nose to _______________?” Fill in the blank with whatever you think God
should do. I’ve tried it, and God doesn’t always pay attention to my queries.
What God does is
provide a source of courage when facing the nightmare of a diagnosis. What God
does is provide a sense of calm when I want to do nothing more than scream.
What God does is provide a sense of peace when everything and everyone around
me seem to be at war. What God does is bless my efforts when I try to walk with
courage and grace in spite of anguish and loss. I believe God does this for all
parents.
I’m not a
theologian. I’m not a pastor. I’m not even very well educated in the Bible. I
do know that the parts about Jesus focus on love, not on blame, not on
judgment, not on choosing which child will be sick and which parent will become
a caregiver or a mourner. I prefer that God—the one that tells me to love and
to keep loving in spite of the things that crush me, in spite of the things
that try my patience, in spite of the things that leave me with only the
tiniest shred of energy, in spite of the things that anger me. I grudgingly
admit that those stupid poems bring comfort to some people, but it’s a false
comfort. It also gives God and the angels a really bad rap. They aren’t picking
and choosing special parents and special children. That’s too dark to imagine.
What God does is provide light and a way to walk the path I took as a parent
and the one I continue to take as a parent. I don’t walk that path because I
was chosen. I walk that path because I love my children.